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7 months ago
Questions
My haematologist started me on hydroxyurea in January and I wanted to share what the first six months have actually looked like, because when I was deciding I couldn't find honest accounts — just horror stories or miracle claims, nothing in between.
Months 1–2: nausea, fatigue, some hair thinning that worried me more than it probably should have.
Month 3: things started to level off. Still tired but manageable.
Months 4–6: two crises, compared to my usual 5–6 in this same stretch last year. Blood work is showing the HbF response my haematologist was hoping for.
It is not a cure. There are still hard days. But the reduction in crises is real and I wanted to offer a realistic middle ground rather than catastrophe or miracle. Happy to answer questions.
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