One network, one way to belong.
Membership is free and open, and it isn't a fixed box. A caregiver might also volunteer as a peer supporter, and a researcher might also become an advocate. At sign-up, you can select more than one option and get every role you check. Start wherever fits you right now; nothing here locks you out of the others.
A real account, not just a name on a list.
Events & RSVP
See upcoming events and RSVP directly from your dashboard.
Community Space
A private space to ask, share, and support other members.
Connect with Others
Find members in your region who are open to connecting directly, patient to patient, caregiver to caregiver, and more.
Member Resources
Access guides and tools reserved for logged-in members.
We've got you.
Skim the categories below and start with whichever fits you right now, or just reach out and we'll help you figure it out.
You are not doing this alone.
Whatever brought you here, a new diagnosis, years of living with it, or a hard week, there's a community here that understands what you're carrying. As a member, you get plain-language education, hospital visits and peer groups, and advocacy for better care. The full breakdown of what we run lives on Programs.
From credible sources
Our educational materials are community-sourced, developed in partnership with people who live with these conditions, their families, and the healthcare professionals who support them. We prioritize plain language and cultural relevance, making sure the information is accessible, trustworthy, and rooted in real experience.
From our community
Members living with pain crises have told us that staying warm, resting, and slow breathing have helped them get through a hard moment. What works varies person to person. These are shared experiences, not instructions.
Showing up for someone else starts with support for you.
Caregiving for someone with a blood health disorder is constant, often invisible work. BHASnet exists for you too, not just the person you're caring for. Members get a caregiver mentorship pairing, mental health workshops, and guidance on navigating the healthcare system.
Listen first
Ask what the person actually needs in the moment rather than assuming. Sometimes that's practical help, sometimes it's just company.
Learn the basics together
Understanding the condition helps you advocate in appointments, but let the person you're caring for lead on what they want you to know.
Look after yourself too
Caregiver burnout is real. Our mentorship program and mental health workshops exist for you, not just the person you're supporting.
Be the person who shows up.
Peer supporters are members, whether patients, caregivers, or anyone with lived experience, who make themselves available to walk alongside someone else going through it. It's one-on-one, human, and often exactly what pamphlets can't offer.
Someone to talk to
Be available for a member who needs to vent, ask questions, or just not feel alone with what they're going through.
Hospital visits & company
Offer company during a hospital stay, help during appointments, or stand alongside someone who isn't being heard.
Especially for immigrants
A lot of our members don't have family nearby. Peer supporters are often the closest thing to that.
Everything shared through peer support is kept confidential.
Help make the programming happen.
Where peer support is one-on-one, volunteering is the hands-on work that keeps the wider network running. Think workshops, campaigns, and the events that everything else depends on.
Workshops & campaigns
Help run awareness campaigns, education sessions, and community workshops.
Event support
On-the-ground help at events, from setup and check-in to coordination and whatever the day needs.
Whatever your skills are
If you've got a skill in marketing, admin, design, or logistics, there's probably a use for it here.
Partnership is membership, just in a different capacity.
Health authorities, clinics, academic institutions, government agencies, faith-based and cultural networks, and companies with a genuine interest in blood health all engage with BHASnet as members too, and together we work out a tailored arrangement rather than a fixed package.
Training & Education
Deliver or co-develop workshops for healthcare staff and community members on culturally responsive blood disorder care.
Research Collaboration
Partner on data-informed studies and treatment approaches, with direct access to community-grounded insight.
Sponsorship & Advocacy
Support programming, campaigns, and inclusive health policy work as a community or corporate partner.
If you're a caregiver, a clinician, a researcher, or an organization engaging with BHASnet, you're a member. Organizations don't have an individual sign-up account; reach out through the contact page and we'll figure out the right arrangement together.
Common questions about membership.
Is membership really free?
Yes. BHASnet membership is completely free. There are no hidden fees and no trial periods. Always has been, always will be.
Can I change my membership role later?
Absolutely. Many members evolve into new roles over time. A patient becomes a peer supporter, a caregiver becomes a volunteer. Just reach out and we'll update your account.
What if I want to be more than one role?
You can select multiple roles when you sign up. The account system is built to support the fact that people are complex, so you don't have to choose just one.
How do I get involved as an organization?
Organizations engage with us through a tailored arrangement. Contact us and we'll figure out the right fit together.
How long does it take to get started?
Signing up takes about a minute. Once you create your account, you'll have immediate access to the member dashboard, events, resources, and peer support.