Peer Support

You're not doing this alone.

A space for members to ask, share, and support each other — open for anyone to read.

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If you are in crisis or need immediate support, please reach out to a professional.

Talk Suicide Canada: 1-833-456-4566
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Emergency: Call 911 or go to your nearest emergency room.

For non-urgent support, contact us directly.

Grace Adeyemi 4 days ago Just Venting

Sometimes I just need people to not say "but you don't look sick"

Had a good friend say this to me again this week, meant kindly, landed like a gut punch anyway. I know it's supposed to…

#invisible-illness #venting

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Fatima Hassan 1 week ago New Diagnosis

Found out I'm a carrier while trying to conceive — now what?

Genetic counseling before we started trying to conceive came back with news I wasn't expecting — I carry the sickle cell trait. My partner…

#carrier #family-planning #genetic-counseling

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Marcus Deng 2 weeks ago Questions

Does the weather actually trigger crises, or is it just me?

Every single Saskatchewan winter I swear my body knows before the forecast does. Cold snap hits and within a day or two I'm dealing…

#pain-crisis #questions #weather

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Kevin Whitehawk 2 weeks ago General

Anyone going to the Blood Donation Awareness Day event in Regina?

I'll be at the Canadian Blood Services booth all day for the Aug 15 event in Regina if anyone wants to swing by and…

#blood-donation #events #regina

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Thomas Bird 3 weeks ago Caregiving

Packing a "go-bag" for surprise hospital stays — what's in yours?

We've had two unplanned overnight admissions in the last year and both times I felt like I was throwing random things into a backpack…

#hospital-stays #preparedness #tips

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Anonymous #51AB 4 weeks ago Just Venting

Tired of proving I'm "really" in pain at the ER

Went in last night with a crisis in my hip and spent the first 40 minutes being asked questions in a tone that made…

#er-experience #stigma #venting

4 0

Aisha Bello 1 month ago Good News

First pain-crisis-free year for my daughter 🎉

Today marks 365 days since our last ER visit. A full year. I genuinely didn't think I'd get to type that sentence when she…

#good-news #hydroxyurea #milestones

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Jordan Fontaine 1 month ago Questions

Transitioning from pediatric to adult hematology — what should I ask?

Turning 19 next month and "aging out" of the pediatric clinic I've been going to since I was a baby. Same nurses, same hematologist,…

#questions #transition-to-adult-care

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Thomas Bird 2 months ago Caregiving

How do you handle school staff who don't "get it"?

My daughter is in grade 2 and her teacher keeps "forgetting" that she's allowed unrestricted water and bathroom access. Last week she wasn't allowed…

#advocacy #invisible-illness #school

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Fatima Hassan 2 months ago New Diagnosis

3 weeks post-diagnosis and I don't know how to feel

Our son's newborn screening came back positive for SCD three weeks ago. We're still waiting on the confirmation bloodwork, but our pediatrician already referred…

#new-diagnosis #newborn-screening #overwhelmed

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